About us
XLH Denmark was founded in February 2018.
The association helps to support those living with XLH, HPP and related hereditary rickets disorders.
XLH Denmark is a founding member of the International XLH Alliance.
If you have any questions or want to know more please send us an e-mail on info@xlh-patientforeningen.dk.
& International representative
Tenna Toft Sylvest
Vice President, MAB
Signe Beck-Nielsen
Secretary
Claus Vever
Diagnosed with XLH and a father to a daughter with XLH.
Treasurer
Bettina Samson
Diagnosed with XLH and a mother to two children with XLH.
Board Member
Stefan Højen Petersen
Stefan is a father to a daugther with XLH.
Alternate
Martin Rygaard Knudsen
Diagnosed with XLH.
Alternate
Bettina Samson
Diagnosed with HPP.
XLH, arvelig rakitis
Medlem og støtte
Du kan støtte foreningen ved at blive medlem eller støttemedlem. Indmeldelse foretages her på patientforeningens hjemmeside.
Tilmeld nyhedsbrev
Når du klikker tilmeld giver du samtykke til, at patientforeningen opbevarer dit navn og
e-mailadresse og må sende dig nyhedsbreve pr. e-mail. Du kan til enhver tid afmelde dig nyhedsbrevet ved at kontakte patientforeningen.